Dr. Barash provides invaluable
contributions. She brings a wealth of
experience and her ability to articulate
concepts, frame issues and strategize is
a tremendous asset to any project.
Priscilla Short, MD, The AMA
Dr. Barash has a strong grasp of
complex problems. More importantly,
she has the unique ability to create
effective programs that implement
accessible consumer solutions.
Jude Goldman, Consultant,
formerly Vice President at
The Stay Well Company
"I don't know why anybody wouldn't
want to know whether what their
doctor is prescribing will actually
work for them".... But I think the public
is still a bit fearful of what genetic
testing is and what it isn't, and how it
could help and how it could hurt them."
Quote from August, 2003: NIH
Environmental Health Sciences Journal;
Environmental Health Perspectives, Vol.
111 No. 11, Pharmacogenetics: The
Promise of Personalized Medicine
Genetics is particularly challenging
because it’s so complex and rapidly
changing. “What they get in medical
school does not usually help doctors
really understand and apply genetics,”
says Carol Barash, principal of Genetics,
Ethics and Policy Consulting Inc. Quote from Bio IT World, Feb. 5, 2003
"At the press conference, Dr. Carol
Isaacson Barash, a Boston ethicist who
directed the first federally funded study
on gene discrimination said she was
giving voice to the countless numbers
of Americans discriminated against by
health insurers because of their
Feb. 27, 1997: Pittsburgh Gazette
“Carol Isaacson Barash, the bioethics
consultant who administered the Geller
study, recalls another case in which a
woman in the early stages of
Huntington's disease was unable to
place her child with a private adoption
agency. A public agency took the child,
eventually matching her with a copule
who had previously been refected
themselves- because one parent carried the HD gene. 'It's a stark
commentary on how society regards
people at risk', says Barash. ”
December 23, 1996: Newsweek
Carol Isaacson Barash, Ph.D.
317 Lamartine Street, #200
Boston, MA 02130
GEPC helps clients achieve their objectives by understanding how people view
their world. We provide effective solutions to a broad range of
challenges facing health care in the post genomic era by using a
multidisciplinary approach to identifying cognitive, normative and environmental
barriers, and hidden assumptions underlying informational needs and
decision-making strategies that discourage change.
Carol Isaacson Barash will participate in the US-China-India Innovation Partnerships Conference, December 9-12, 2008 at Hynes Convention Center, Boston, Massachusetts, U.S.A.
The book is a "must read" primer for health care professionals,politicians, health law attorneys and educators. Policy decisions about various aspects of genetic technologies are currently being shaped. Barash's book provides a framework for many of the thorny ethical issues that must be considered and addressed head-on, because the implications will mightily affect future generations. Just Genes is a blueprint for debate on specific, practical issues that genetic technologies raise. Chock-full of material and organized in an easy to digest format, the tome is the type of reference book that will be picked up and re-read time and again.
Janice F. Mulligan, MULLIGAN & BANHAM, CA. ___________________________
The genetics revolution links complex science to decisions that are both momentous and yet quotidian: Whom to tell or treat or warn? When? How much? But for too long we have lacked a comprehensive and accessible account of the ethical issues raised by such decisions -- a pity, since ordinary patients, clinicians, scientists and policymakers will need to make these decisions, whether they want to or not. Dr. Barash's book therefore comes as a sorely needed unguent: A smart, readable and thorough account of some of civilization’s most interesting and important ethical issues.
Kenneth W. Goodman, Ph.D.
Director, University of Miami Bioethics Program
Genetics is at the forefront of medicine today and also at the forefront of ethical and political controversy. Carol Barash is uniquely positioned to explore this moment of prospect and dilemma, because of her training as a philosopher and her lifetime of work in the field of genetic consulting. Barash’s instincts for moral dilemma are as acute as her clarity about scientific advance, making this a textbook for students of genetics, but also for the wide berth of learners from the humanities and social sciences wishing to understand where this crucial science stands, and how to think about its human costs and benefits.”
Director, Institute for the Humanities, Mary Fair Croushore Professor of Humanities, University of Michigan